But First...

***Update as of 10:25. The docs have made their rounds and set an agenda for today. They will do another blood transfusion today as well as an ultrasound on her upper extremities. They want to make sure she is not clotting. They have her on extra potassium as it was low this morning. They will remove her central line and her folly (Sp?) so she will pee in her diaper. She seems very uncomfortable. She has a lot of "junk" in her chest and is trying to cough it up. They informed me that she is where most babies would have been yesterday...she is a day behind.



I have a pretty big update on P head but first...

I must rave like raving has never been done. This is what I had for breakfast/lunch yesterday at the hospital:

OH MY! My first taste of Gigi's cupcake and I fell in love! I cannot tell you the joy it brought to me despite all the blahness (read crap) going on right now. Yes, I am spending long days and nights in the hospital while my baby girl tries to recover from open heart surgery. But when you got friends like this that go out of their way to bring you joy-in-a-huge-chocolate-cupcake like this, all things seem better. Thanks, friend!!! :)

Now, the update. Last night was a little rough. As the day progressed Presley grew very swollen. She looked like a teeny tiny oompa loompa!! That's not funny, I know. They were giving her a lot of diuretics and the girl would not pee! They pulled out the handy-dandy ultrasound to find the problem and find it they did. She, obviously, was retaining a lot of fluid. All this fluid on her abdomen was putting pressure on her kidneys and not allowing them to work correctly. So, what did they do? Another stinkin' procedure. Just when you think you have given your child up for all the surgeries she can stand, you're wrong. You have to give her up again.

So, they placed a drainage tube in her stomach to release the fluid. It instantly drained about 6 ounces of fluid off my baby's belly. Ah, relief!!! She looked like a totally different child. It was amazing. She slept pretty good through the night but woke up cranky this morning.

She did eat some this morning and that seemed to ease her fussiness! But when her surgeon came in this morning, she was not impressed. She said Presley is taking her sweet time recovering. She said her belly is still too puffy for her liking and her eyes are as well. It is looking like we will spend another night in the PCICU. By the way, Daniel and I did not get a sleep room last night so we have communal living and it was very strange for me. Ew!