Here goes...

I have a lot to update!! I don't even know what day it is!! Sunday was a day of great rejoice. Monday was a day of greater rejoice!!

Like I said in the last post, I thought we would end up being discharged from the PCICU. Well, much to our surprise we got a room on Monday! Woohoo!! Presley was in shock as we rolled down the hallways to her room on the 6th floor. Presley took her time getting oriented with her new environment...so cute!!!

But it didn't take long for her to realize she did not really like it there. She got very fussy as the evening went on. My theory...she is aware that she is on her back and she will not sleep on her back!! I listened to her cry for so many hours and doctors wanting to try everything to not medicate her that my patience wore thin. I was forced out by my mom that night! She made me leave and get some rest without a baby crying in the background!

When I arrived Tuesday morning they had removed her drainage tube from her stomach and she seemed to be much better and more mobile!!! When they checked her vitals, however, her fever was up and they were unsure why. They drew more blood and placed a catheter to check her urine for infection. They gave her some Tylenol and her fever broke some throughout the day.

But by 8:00 Tuesday night it was back. At this time, they decided to start her on IV antibiotics. The first dose went off without a hitch. The second one, not so much. The second medication is "hard on the veins" and can cause itching and redness. Well, you know how it goes, if it can happen it will happen to her! She got itchy and extremely fussy. At around midnight, the nurse gave her some Benadryl. Ah!!! Sleep!!! For an hour anyway. As they came into the room for one thing or another each hour.

Presley ate like a champ around 2:30, 5 ounces to be exact. And, yes, that is double what she was eating prior to surgery.

So, Wednesday morning reared it's ugly head as quickly as Tuesday night faded away. I listened in on the "rounds huddle" only to find out that the earliest we could go home would be F-F-Friday. Yeah, you heard me right, Friday. That is two days from now. That is two more nights of that sleep. That is two more days of my baby girl being poked and prodded. Two more days of laying on her back getting more and more restless.

As of today, I have been at the hospital most of 7 days. So, I took it upon myself to leave and head home for a few hours. Ya know, shower in my own shower, lay on my own couch, and whatever you do when you are at HOME!!

So, they will keep her on the antibiotics for 48 hours and then she must be fever free for 24 hours. That means that even though they say Friday if my girl decides to keep that fever even after antibiotics we will be here even longer.

I have appreciated all the prayers and virtual hugs. And I will beg of you not to let those fade. I am so ready to get my baby home and trust me, she is ready too!!